My PCOS Story

I have thought long and hard about writing this post.  This is going to be very difficult for me to write, but I’m hoping that by doing this, will help other women in the same situation as me.
This post is inspired by Jade from Wing It With Jade. After reading her post, it made me realise that I’m not alone and that so many other women suffer the same as I do. Have a read of  Jade’s story here

What is PCOS?

Polycystic Ovary Syndrome (PCOS) is a common hormone imbalance, and affects 1 in 5 women in the UK.  There are many symptoms of the condition, and PCOS affects every woman differently, but some of the more common symptoms include . . .
– No periods, irregular or very heavy periods
– Reduced fertility
– Unwanted facial and body hair (hirsutism)
– Acne and oily skin
– Weight gain and trouble losing weight
– Depression and mood changes
There is no cure for PCOS, but symptoms can be managed.

My Diagnosis

I was diagnosed with PCOS quite a few years ago now, back in 2002.  I had just registered with my GP after coming home from 3 years at University.  I had concerns that I had put quite a lot of weight on in a fairly short amount of time, and spoke to my GP about this, who after asking me some further questions, raised his concern about PCOS.I had to have a series of tests done, including full blood tests, urine test, MRI scan and an internal Ultrasound scan (which was quite frankly yuck)  I was referred to see an Endocrinology Consultant at my local hospital, who told me the news that I had PCOS, and there wasn’t much to help me with the condition, just to try and manage my weight and when I wanted children, go back and see them and they would offer me some fertility help.

So, there I was, age 21, having just finished University, told I had this condition, and that I may never have children without any medical help.  I felt very lost and alone – I felt like I was the only one in the world with this condition, and I didn’t know what to do.

There was no help available, no-one to turn to for any advice, so I started doing my own research on the internet, but all of the information was American.  I then discovered Verity (the self-help group for women with PCOS), and I can say this without a shadow of a doubt – Verity saved me.  The information and advice they provided was invaluable at a time when there was nowhere else to turn to.

PCOS and my Confidence

After having PCOS for over 10 years now, I still struggle every day with the symptoms, which for me are being overweight, bad skin, excess facial hair, and low mood.  My self-confidence has really taken a nose dive over the last few years, and I always struggle with how I look and feel about myself.  People are quick to judge – they see a larger lady like me, and they make assumptions that I am fat, unhealthy and eat cream cakes all day long.  Nothing could be further from the truth, but people can be very nasty and they think its ok to call you names and make assumptions about you when they know nothing about you at all.

I sometimes feel that having PCOS has robbed me of my femininity, and I keep saying to my boyfriend that I don’t understand how he can find me attractive, he tells me that he does, but this is where I struggle the most.

Having read this post back, I realise I have rambled on quite a bit, and it appears that I am feeling super sorry for myself.  I’m not sure if I will edit this post before I publish it –  or do you guys want to know the real story of living with PCOS and low confidence?

If any of you reading this post have recently been diagnosed with PCOS, let me know in the comments below.

For more information on PCOS and for support and advice, have a look at Verity’s website here

4 Comments

  1. 10/11/2016 / 5:56 pm

    Fantastic post Sarah, this is soooo incredibly brave of you. I'm so happy that you took comfort in Verity (I myself had never heard of it so I'll have to check this out!)
    The biggest thing to remember is that we're all in this together as you so rightly said! You are beautiful on the inside and out. What you've written will help soooo many others and will hopefully help to break the taboo around women's bodies!!! Xxx
    Jade
    http://www.wingitwithjade.com

  2. 10/11/2016 / 9:00 pm

    Awe thank you Jade. Verity really are super helpful, and offer so much advice.
    It was a hard thing for me to write, and to be so open about it, but if it helps other women in the same situation then I know it will have been worthwhile x

  3. 04/02/2017 / 10:09 pm

    Hi,
    I have just come across this blog post. I don't have PCOS, But i am studying it currently. As part of my project i am creating a book that's has more interesting aesthetics to read about PCOS (I do graphic design, i want to get away from the simple leaflet look) Would it be okay if i quote you in it. As a big part will be to rely upon emotion as well as fact.

    Hopefully your fine with this.

    Thanks

    Sarah Lilliman

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